Maya Xiong and her mother, Kao Xiong.

#010 | Maya Xiong

October 13, 2022

“When she was about a year old, I noticed my daughter was declining and she could no longer walk or talk. My husband and I took Maya to Gillette Children’s for genetic testing. She was diagnosed with infantile neuroaxonal dystrophy (INAD). It’s a rare genetic neurological disorder. The Gillette therapists work with Maya as a team and are helping her learn to use a communication device. The therapists tell us they want Maya to communicate with the world. That keeps us going.”

Stories with Maya

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